Monday, October 28th
Mom wanted to celebrate Halloween with a movie, and she was intrigued that this was Johnny Depp's first movie role. I was afraid it would be too gory, but it wasn't, and we had fun. Mom thought maybe she should try other horror movies since that wasn't so bad, but I cautioned her against trying things blindly. That could really not end well.
Tuesday, October 29th
Had another relaxing massage in bed. I don't feel like getting up, as the only place to go is the small dining room across the way from my room and it's freezing cold in there! I would much rather stay comfy in bed. She also mentioned that my regular person would be staying on the mainland through November. I am really glad this alternate got set up!
Wednesday, October 30th
I got a little nervous thinking the first of the month was in two days, and then I realized I would be keeping Humphrey’s photo essay up for another month. I really do need to get the next essay going before too long…
Thursday, October 31st
Today was my follow-up appointment with my new neurologist! My sister and my mom came with me as they wanted to ask and hear answers to all their questions. I had developed a list of questions with my sister that I had brought with me. I navigated all the way through the office building all by myself, which I often can't do. It was early for me so I was still good. The gist of what we learned was that my MS is too advanced for all the regular drugs to work on me, so right now I don't need to take anything! I absolutely needed help getting out of the building.
Nobody makes a big deal out of Halloween here. I handed out lollipops from Whole Foods for the little kids and regular candy for the big kids when I lived on Maui, but nobody would be stopping by here to trick-or-treat. The nurses and staff mostly did not dress up. The most I saw was one CNA put on a tall, green-striped hat and did not even understand the reference.(The stripes should be red in my opinion, but it was clearly Cat in the Hat! These kids…)
Friday, November 1st
I opened the Criterion app so I could check out this month’s movie collections. It's Noirvember so there are lots of movies from the 40s and 50s that I have mostly heard of but haven't seen. Wonderful! They also have a collection of Coen brothers movies. I have a new movie festival to watch every month. I love it! I have relished re-watching movies I have seen and enjoyed.
Saturday, November 2nd
My sister came by and we ended up talking about money, which is never my favorite subject. My philosophy is to use it while I have it. Mom and my sister want me to save so I have money in the future. Of course, who knows what will happen and I would rather err on the side of enjoying it now as I don't need to die with money left over. Mom ended up joining us and we actually came back to a good agreement. We are agreed that nothing I have been doing up to this point has made a significant, noticeable difference in my condition.
I just got the LDN prescription and I am out of my supplements. We will start the new prescription for a month and see if we notice a difference there. Then I will add the supplements full on, and we can see if that makes a difference. I strongly feel they will, as they have for about 25 years up to this point. They also don't work specifically on the MS, but on what the body needs generally for good health. Anyway, this is a good plan moving forward.
Sunday, November 3rd
My therapist brought maybe new kitty over for a visit. I thought I might try talking to him when he was with me to see if that was any easier. It wasn't. I think he definitely responded, but he did that by cuddling with his stuffed animal and falling asleep in the back of the carrier. I also nodded off as I tried to talk to him. I need to call my friend and get some tips on talking to animals. I didn't mind him falling asleep, as I remember how much I loved just being in the same room as Humphrey.
I don't know when it will go beyond visits from a kitty I started to know. When I was talking to my sister yesterday, she pointed out that I say "my cat" without seeming to acknowledge the effort it takes for someone to care for a cat and transport them to me. What she doesn't understand, or what I am not communicating strong enough, is that I am well aware that I do not directly look after "my cat." I do not get to feed them, sleep with them, or live with them. Calling them "my cat' is me giving myself the illusion that I have some small shared ownership. I cannot be too hard on my sister, as I know she desperately wants to help me have a cat. I saw her eyes well up when we talked about it. All I can do is know that it will happen and make do until then.
This week’s cover photo was taken outside the Physicians Office Building where I had my doctor's appointment. It's right around the corner from the hospital entrance where I had my MRI a few weeks ago. Have a great week!
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